A quiet Sunday

Hannah was up and ready for her day at 7 am.  She seems to be totally past her surgery.  She hasn't had much of an appetite today but her energy level has stayed on high all day.  We enjoyed church and receive many cards from the kids of the church wishing her well and a quick recovery. I talked to 5 or 6 folks about being here in New York and what it has meant for us.  It is really more than just a medical procedure.  Hannah and I have lots to learn and lots to share while we are here.

Hannah spent her entire afternoon playing barbies with her friend Katherine.  All day they were in and out of our room to getting clothes and other accessories for a great Barbie day. Dinner was a fortified tomato soup meal and fortified chocolate milkshake. I tried to give her a blended mac and cheese meal but it was not going anywhere near her mouth. While Hannah really likes mac and cheese she does not seem interested in drinking it.  Monday morning will see Hannah have her next doctor's appointment.  She will have her device activated for the first time. The "key" will be turned twice a day.  Pray that she will not experience too much discomfort or pain.

That's today's update.

Hannah and John